Nolan had his post-op appointment for the supraglottoplasty today. He has discontinued the oral steroid and the pain medication, and will continue the antibiotic and his reflux medications. The weaning from the pain medication has left him rather cranky, but he seems to be fine most of the time.
I wasn't expecting the impromptu nasal endoscopy (a scope to verify his recovery is going well). This required more cotton with lidocaine up the nose, the papoose board, and a flexible scope going up his nose and down his throat. With the number of times the little guy has been held down for similar procedures, he's going to develop a complex about things going up his nose!
The endoscopy showed lots of scabs where the laser burned tissue. This is expected, but it made me sad to see all the burn marks. The poor little guy has to be in so much pain when he swallows! The scope also showed that the laryngomalacia is completely gone- his epiglottis is no longer flopping on top of his voice box when he tries to breathe.
His ENT gave him the all-clear to resume all activities, and wanted to see him back in another 3-4 weeks for a repeat nasal endoscopy. The office staff made his next appointment for March 28, however, so I have a feeling I might have misheard the doctor. He also has a follow-up sleep study scheduled for May, and we will verify that the obstructive sleep apnea has disappeared.
The important thing is to keep on top of his acid reflux (the extra-esophageal or LPR reflux, specifically), so the laryngomalacia and other airway difficulties do not recur. For now, the Zantac and Nexium are working to prevent further damage- I suspect there will be more pH probes in the little guy's future.
We did give Dr. B a little present- to thank her for figuring out much of Nolan's medical craziness. We painted a pot with Nolan's handprints and I wrote, "Thank you for helping me grow" on the rim. It seems a silly gift, but how do you thank someone for saving your kid from future heart failure? I suppose a plant will have to do- words can't express how grateful we truly are.
The last reason is that the Week of Craziness has officially begun. Today, we made the plant gift for the ENT, ran up to Buffalo and Back, Matt went to hockey, and I made a bazillion snowmen cupcakes.
I hope everyone has a Merry Christmas (or had a Happy Hanukkah or other celebration)!
*Our school district doesn't go on winter break until December 23, so we have a busy week ahead!