Articles I Have Written
- The Best Books for Kids with Hearing Loss
- Sleep Studies for Kids
- Adjusting to Hearing Aids
- Free Resources for Deaf and Hard of Hearing Children
- First Steps When Baby Can't Hear
- When Baby "Refers" on the Newborn Hearing Test
- Water Sports with Hearing Aids
- What is the Newborn Hearing Screen?
- The Best Hearing Aid Accessories for Kids
- Choosing Eyeglasses for Kids
- Great Hearing Loss Simulations
Saturday, August 20, 2011
Enjoying the Rest of Summer
Since the week after school starts brings an onslaught of doctor appointments (sleep clinic, ophthalmology, and the Cleveland Clinic in a four-day span of time), we are making the most of our summer days. We went to a local pool yesterday, we're going to playgrounds this weekend, and next week will be spent slip-and-sliding, playing, and otherwise participating in non-educational fun. Summers are entirely too short.
As a side note, the new CPap mask is marvelous, but Nolan still won't keep it on all night. He wakes up crying, because the air is hurting his nose. Or the air is leaking into his eyes. In the middle of the night, we are bleary eyed and exhausted, trying to fix the air leaks and the hurt nose. Part of the problem is the chronic congestion Nolan gets from the reflux. Part of the problem is a flat nasal bridge. Part of the problem is trying to stick a confining mask onto a tiny child, who cannot really understand the implications of not wearing it (the only other way to fix the apnea is a fundoplication followed by a revision supraglottoplasty - something we are trying to avoid).
In the meantime, we are stumbling around like zombies from lack of sleep. We've never really gotten a full night's worth of sleep since Nolan was born, but at least we learned to sleep through him crawling around our bed at 2:00am. With the CPap mask in place, we repeatedly get up and go into his room to adjust it.
I am on the hunt for a full-face C-Pap mask for kids. That may solve his congestion issue, because the air pressure could be delivered through his nose and mouth while he sleeps. The other option is to put him in a bassinet next to our bed, so that we can take care of him without having to get up multiple times during the night.
Anyone who has been-there-done-that, what have you done to keep the mask on your child through the night? We need some tips!