Sunday, August 14, 2011

Breakfast, Brunch, and Brinner

Nolan's appetite picked up a little today. He ate dry cereal and yogurt at breakfast. He didn't seem very hungry for lunch, but we gave him french toast sticks and he ate a few of those - and then he had waffles for dinner. At this point, if he'll eat it, he can have it.

You know those people who always say, "Don't worry - a child won't starve himself?"


Turns out they're wrong.

Before I had kids, I had a list of things we would never do. We would never let the kids sleep in our bed. We would never make a separate meal for them. Lists and lists of "we would nevers."

Then we had a child who would, in fact, starve himself. A child who really does stop breathing at night. A child who not only lacks the sensation of hunger at certain times, but feels full to the point of nausea during these episodes.

He's down to 29 pounds (from a high of 32 pounds - he lost almost 10% of his body weight), but his appetite is coming back. If he wants waffles for dinner, he gets waffles for dinner.

We decided to hold off on C-Pap for one more night, to get him back onto a normal diet tomorrow. If he can eat some real food and keep it down, we'll start C-Pap again Monday night. He had more energy this evening, so things seem to be on the uptick.

In the meantime, I'm stocking up on french toast sticks.


rouchi said...

The cramps must be so terrible, isn't the doctor going to solve these issues?I am surprised at the unending list of issues and really .....the doctors need to look in, the poor guy suffers!!

Melanie said...

I too had a long list of things I would NEVER do. Then you become a parent and reality sets in. You are an amazing, resilient Mom. Nolan is very lucky.

leah said...

The pain is agonizing when it sets in - we are really hoping the Cleveland Clinic can set us in the right direction. This just isn't normal - though he is (finally) doing a bit better this morning and is eating more heartily.

Julia said...

Yes, most of my "nevers" flew out the window, too. Was reading someone else's blog post, and she said that there isn't a "What to Expect: Children with Special Needs" edition for a good reason -- you never know what to expect! I hope today goes well.

Herding Grasshoppers said...

You are a WISE MOMMY :D


Kyla said...

I haaaate it when people say that. One of my biggest pet peeves.

I hope he starts feeling better and you can figure this out soon.