Using the C-Pap machine with Nolan is a real chore. The poor little guy has reflux so badly that the machine can't get through all the congestion in his nose, and the air blowing against his already-inflamed nasal passages causes him great discomfort. Listening to him cry in pain until he goes to sleep is simply awful.
And then he gets the bronchitis-sounding cough in the morning, and a very hoarse voice. All this from only using the C-Pap machine for 3-4 hours every night. I just don't think this is going to work for him.
We're persisting until we can see the Sleep Clinic neurologist on the 5th, because Nolan desaturates without the C-Pap. Of course, he is so congested that we doubt it is doing any good, but I need the doctor to see the congestion and hear his lungs. Docs tend to "get it" better when they can observe the actual effects, rather than simply being told about it by the parents.
The sleep issues have me worried, because Nolan starts school on Thursday. His teacher has been forewarned, thank goodness. Nolan frequently sleeps until 8:30am or later - and before anyone says, "WOW, I wish my kid did that!" keep in mind that Nolan desaturates constantly, and has "arousals" every minute of sleep. He wakes up, at least partially, at least 60 times per hour. This is why he sleeps until 8:30, and is still cranky as a bear.
When school starts, I have to get him up at 6:30am, so that he can have his Nexium at least 30 minutes before breakfast. Then I have to get him to eat (for Nolan, this usually takes 45 minutes), get the Zantac into him, set up his FM system, and get him to the bus stop in a fairly decent mood. I'm pretty sure the other things will be no problem, but the decent mood part is going to be tough.
I suppose we'll see what happens once school starts.