Dealing with hearing loss can be difficult in and of itself, but there are several syndromes which have hearing loss as a symptom. From birth, we've been a bit concerned about Nolan's forehead shape, which seemed to have "corners" and was flat in the front. The pediatrician and ENT never noticed it, so we thought perhaps he would grow out of it, or that it was a minor thing that didn't merit attention.
As he's grown, a silent terror has grown inside of me that something else is wrong with our little boy. We are in the beginning stages of the diagnostic hurdles, and have many doctor appointments scheduled in the coming week. On Monday, I will discuss my concerns about head shape with his pediatrician. Instead of becoming less noticeable, Nolan's forehead is protruding more. I am concerned about craniosynostosis, which can be found with hearing loss. Most of the syndromes including hearing loss and craniosynostosis have other features (such as webbed fingers and/or toes), but I am concerned nonetheless. I have a first cousin who had craniosynostosis as a baby (surgery corrected it at one month of age). This condition is usually dominant, though, and neither Dennis or I ever had it as infants.
Here is a picture of Nolan with his Grandpa on Christmas Day- you can see how elongated his head is becomming:
We will have to wait and see what the pediatrician says on the 7th, and/or what the ENT says on the 9th. He has to have a CT scan for the hearing loss, anyway, so I am hoping they do a cranial X-Ray to make sure the sutures in his head haven't prematurely fused.
My heart will skip a few beats until we get a few more answers. Knowing is always better than not knowing. And I fear for my little guy.