Articles I Have Written
- Laryngomalacia
- The Best Books for Kids with Hearing Loss
- Sleep Studies for Kids
- Adjusting to Hearing Aids
- Free Resources for Deaf and Hard of Hearing Children
- First Steps When Baby Can't Hear
- When Baby "Refers" on the Newborn Hearing Test
- Water Sports with Hearing Aids
- What is the Newborn Hearing Screen?
- The Best Hearing Aid Accessories for Kids
- Choosing Eyeglasses for Kids
- Great Hearing Loss Simulations
Tuesday, June 19, 2012
(Not) Saying Goodbye
Nolan's school year is rapidly coming to a close. His Pre-K teacher celebrates the kids' summer birthdays throughout the month of June - Nolan was ecstatic to bring home his little birthday bag and wear his 5 year old birthday hat.
Since he is going to full-day kindergarten next year, he will start receiving services from the school district's teacher of the deaf (TOD) and speech-language pathologist (SLP). This means that we must say goodbye to his current TOD and SLP, who are through the county.
Except, of course, we are not really saying goodbye. We joke that his SLP is his "other mother," as she has been with our family since Nolan was 8 months old. She held him as a baby, cheered on his first steps, and gave him a voice. She helped transition his entry into preschool, and is passing the baton as he enters kindergarten. She is more family than therapist, and there is no way we could truly say, "goodbye." She might not be providing therapy services anymore, but she will always be a part of our lives.
What in the world can you give to someone who has given both of your children a voice? There is really nothing that can compare to that gift. I did find a neat little locket on Etsy (from Punky Jane's jewelry) that fit the bill.
It is hand-stamped and the inside says, "Thank you for my voice, Love Nolan."
We had our last home visit yesterday. We refused to say goodbye, since it really isn't a goodbye. It is more of a transition to an exciting Something New.
But still, the tears are flowing.
Thursday, May 17, 2012
CSE Transition Meeting
When students transition from the preschool age group setting to the school-age setting, a special education transition meeting must be held, since the service providers change from the county to the school district. Nolan's transition meeting was today, and he moved from CPSE (the Committee for Preschool Special Education) to CSE (the Committee for Special Education).
One of the hard things is determining exactly what Nolan needs. He's quite bright and developmentally on track. He technically qualifies for an IEP in two different ways: the first being "hard of hearing" and the second being "other health impairment." His primary disability is the hearing loss (this affects his education the most), so this is his classification in the school district.
Our elementary school is fantastic and has a Teacher of the Deaf (TOD) on campus. Nolan has some vocabulary gaps and some language processing issues (some of this is due to his fluctuating hearing loss, which has been known to cause central auditory processing disorder - CAPD - in children). In children who are deaf or hard of hearing, this problem isn't referred to as CAPD, but is simply considered an effect of the hearing loss. Nolan needs some pre-teaching and some work on processing phrases, multiple step directions, and auditory discrimination skills in the classroom. The team decided that 30 minute daily sessions with the TOD would be appropriate - these sessions may be push-in or pull-out. "Push-in" means that the TOD will go into the classroom with Nolan, and "pull-out" means that Nolan would be pulled out of the classroom for a one-to-one session.
The biggest debate was speech. Nolan has some speech errors, but the majority are developmental in nature. He has W for L, misses S occasionally, and has the normal speech errors of a four year old (difficulty with R and TH). He does sometimes miss the D sound in words, and will confuse M for N. These errors are related to his hearing, and can fluctuate with his hearing level. Some weeks he has a solid D sound, other weeks it nearly disappears.
In the end, we decided to keep speech therapy, at least for Kindergarten. If the developmental errors disappear and his articulation becomes clearer, then we can always drop it. We'd rather not get behind the 8-ball with his speech, as it is easier to prevent a problem than to remediate one. He'll get speech twice per week at 30 minutes per session, which may be in (very) small groups or individually, as the speech language pathologist sees fit.
There are also a few "alerts" put into his IEP - things his kindergarten teacher should monitor. Nolan's gross motor skills are borderline, and his fine motor skills have come along nicely. Still, we want to watch for fatigue and make sure he is able to develop age-appropriate skills. He still can't hop on one leg like his peers can (or throw a ball well), but that may change over the summer (hint: Mommy Boot Camp is in session this summer).
The meeting went very well, and I am so thankful that we live in the best school district in the area for kids with disabilities. The team at our school really ensures that every child is given what they need to excel!
Tuesday, January 4, 2011
Back to the Routine
Of course, as soon as we reached the bottom of the staircase at the preschool, he balked.
"I'm too tired."
He often claims this, after walking for a little way, and we have to carry him for a while. Fortunately, his speech therapist met us at the door and helped motivate him to walk a little farther.
He went into his lock-kneed stance at the door of the classroom, and froze in place. Our most wonderful and beloved Speech Language Pathologist (SLP) came to the rescue again, marching behind him to see if he would copy her march. He didn't, really, but he was sort of pushed into the classroom and she began to engage him with an activity. I could slip away, letting him re-acquaint himself with the classroom routine.
Have I ever mentioned how grateful I am that we decided to pursue push-in services? Honestly, our SLP is truly a superwoman- helping him on the social front as well as with speech/language issues.
Hopefully he'll re-adjust to school very quickly, and pick up where he left off with the socialization situation. With Superwoman the SLP, I have a feeling it won't take him long!
Monday, January 18, 2010
Hooked on Phonics...
Anyway, here is a video of Matt "reading" one of his Bob Books (0 to 10):
Monday, January 11, 2010
Houston, We Have a "Yes"
"You go outside."
Or if you asked him if he wanted to have a snack, he would say,
"You want snack."
He didn't nod his head, never said the word "yes" unless it was in direct imitation, and would parrot whatever you said, word for word.
We have worked for months to get a spontaneous "yes" out of Nolan. It literally took months of modeling, practicing, and therapy to eliminate the echolalia and get the concept of "yes" into Nolan's head.
Here it is, in all its glory:
I never knew such a simple word could make me feel so happy!
In other news, we are heading up to Buffalo Hearing and Speech Center tomorrow for a third attempt at getting accurate hearing levels. Our audiologist called on Friday to cancel the appointment (we have had nearly every appointment since June cancelled or moved at the last minute- it's getting a little old). I told the staff I wanted to keep the appointment, so we're going to try the testing with a different audiologist. If we wait any longer, Nolan will have had the sleep study and ENT/GI doctor appointments and will be wary of the sound booth again. Plus, we have already arranged for Dennis's time off from work and for the prescription to get faxed up from the pediatrician's office.
Wish us luck- I hope Nolan cooperates this time around. Maybe a different audiologist will be a good thing, since he doesn't have as much familiarity with her. On the other hand, he could flip out and refuse to cooperate at all, which would mean that we have to schedule a fourth hearing test. Since I really hope to avoid that scenario, I am praying for a compliant and cooperative two year old tomorrow morning. Though I'm pretty sure that "two" and "cooperative" is an oxymoron, there's always hope that he'll be in good form tomorrow!
Wednesday, January 6, 2010
What We're Working On
Nolan's speech continues to take off, with such spontaneous phrases as:
- "I don't want green sock. I want white sock!"
- "Matthew pushed me! No pushing, Matthew!"
- I don't want take nap."
We are actively working on some language processing skills. Nolan struggles with echolalia (the fancy term used to describe parroting back what you just said) and auditory processing. It isn't a severe issue, but it is rather obvious during many exchanges.
An example of the echolalia would be this:
Question: "Nolan, where did you go today?"
Response: "No-wa, where go day?"
He will answer a simpler question, such as "what color is this flower?" because there is only one possible answer, and he doesn't have to think of what to say.
Another example of auditory processing issues is this:
"Nolan, do you want blue or yellow?"
"Yellow."
"Nolan, do you want yellow or blue?"
"Blue."
"Nolan, do you want blue or red?"
"Red."
Instead of thinking about what he wants, he simply mimics the last word uttered. Frankly, it's easier than thinking of both choices and then choosing the one he wants.
So we're working on the echolalia with a lot of modeling. This appears to be working in some ways, because we have gotten a spontaneous "yes" response twice this past week! It will be an ongoing exercise for us, as the more open-ended questions will take a bit more work.
To get Nolan to listen to a whole sentence and retain it (rather than just repeat the last word as his answer), we are giving him two choices, but with one choice far less desirable than the other. And the less desirable option comes last in the sentence. For example,
"Nolan, do you want to go sledding or go inside?"
"Nolan, do you want to play with playdough or do a puzzle?"
"Nolan, do you want juice or water?"
This is working very well. Often he'll stop, start to say "water," then look at me to repeat the sentence. This time he'll listen to the whole thing, retain both choices, and select the one he really wants.
His preschool did a speech screening last month, and I am interested to see how he did with an independent Speech Language Pathologist. I wonder if he "passed" or "failed" the screening. He receives speech services through June no matter what, but we will have to have another IEP meeting next October to continue or stop his current services. He also starts the Universal Pre-Kindergarten program next year, so if he gets speech therapy, it will likely be during school.
Thursday, October 22, 2009
Random Update
- "I don't know where Matthew is!"
- "My not a baby. My a big boy. Matthew baby!"*
- "I got my Grandad!"
- "My a frog. RIBBIT RIBBIT!"
He's also been responding better to sound, which is a big relief. We had about a month of poor response, which occurred with a cold. We know that Nolan's hearing level drops to about 80dB in the presence of fluid, so it is a big relief to see his behavior returning to "normal." He's turning to his name again, and even seems to be doing well in the presence of background noise. He turned when his name was called at preschool (the voice was behind him), and responded to Daddy's voice at the very hectic "Zoo Boo" event we went to last night.
The Nexium seems to be working well, and Nolan has been eating a good amount this week. He still isn't sleeping through the night, but our recent discovery that apple juice is on the "no-no" list may help matters a little.
It is nice and uneventful around here- just the way I like it! The only upcoming appointment is for earmold impressions on the 30th and then a well-baby checkup (2 year) in November. I love it when everything goes along so smoothly!
*Matthew heartily disagrees with this statement, and has indicated on numerous occasions that he is a big boy. This is a common point of contention between the two boys!
Tuesday, October 6, 2009
Speech Sample: 25 Months
Thursday, August 20, 2009
Small Steps
*Noh is what Nolan calls himself. Silly parents for giving him a name filled with low frequency sounds!
Monday, June 8, 2009
4 Word Sentence!
Thursday, May 7, 2009
A Problem I'm Ecstatic to Have
Monday, May 4, 2009
Keeping Those Darned Things In!
Our SLP demonstrates her excellent hearing aid replacement skills
I am no longer frustrated by this behavior. Just weary of it. We want to keep Nolan's aids a positive thing and avoid power struggles, but at the moment he is only wearing them for a few short hours out of every day. The tubing is now torqued because he has ripped the earmolds off so frequently.
I heard, once, that the hearing aid struggles decrease by the age of two. I can only hope.
Wednesday, April 29, 2009
I Think We Finally Did Her In
Blowing bubbles: pop, pop, pop!
To prove that we have the best speech language pathologist on this side of the Mississippi, take a gander at the boys' shirts. She made those - one says, "I'm the big brother" and one says, "I'm the little brother." Too cute!
Painting with sidewalk paint
Cheap, easy to make, and fun: sidewalk paint
We've been doing a lot of outdoor crafts lately. The latest was sidewalk paint. We discussed color, wet vs. dry, messy vs. clean, and words like drippy, thick, thin, and mixture.
For anyone brave enough to do sidewalk painting at home, the recipe is really simple:
- 1/4 cup cornstarch
- 1/4 cup water
- 6-8 drops of food coloring
You may want to double the recipe, though. We went through our paint really fast! Cleanup is simple. You can sweep it away with a broom once it dries, or get out the garden hose.
Monday, March 2, 2009
Fun at "School"
Saturday, February 7, 2009
I Didn't Teach Him That!
When you find out your kid has a hearing loss, you find out that one of the things they miss out on is "incidental learning." They don't overhear things as easily, and might miss out on some language and learning opportunities. This is probably why, for instance, Nolan looked at me blankly when I asked him where the toy firetruck was. We haven't specifically sat down to play with firetrucks and labeled them as such (this has been remedied, by the way).
Thursday, February 5, 2009
A New Word
Tuesday, November 18, 2008
Early Intervention WORKS
The testing was interesting. There were puzzles to put together (Matt got to the five-piece puzzles and was stymied after that). Blocks to build in patterns that matched a template set up by the psychologist (he could do anything with three blocks, but four blocks were a little difficult). Lots of questions for information (he couldn't name the colors in a rainbow, for instance). There were also a lot of receptive language questions. He missed two that I thought he would get- one of a lamp (we don't have bedside lamps, so he isn't familiar with the term) and one of an iron (embarrassing, but I don't iron our clothes very often).
Matt's responses to some of the questions were rather interesting. A selection of his answers are below:
Thursday, September 18, 2008
Wonderwoman (AKA our Speech Therapist)
Nolan had an absolutely amazing speech therapy session on Wednesday. We had lost the words "ball" (pronounced da) and "Uh-Oh" (pronounced uh), which was rather upsetting. We have been working very hard to get them back, and Nolan successfully uttered "Da!" for us several times during our session. Then, to further wow us with his unending potential, he proceded to imitate "eat" (eee!) and "Kitty" (not a consistent sound, but one that usually has a "kh" sound somewhere within the squeal). I'm not quite sure how Mrs. C. manages to get Nolan to become a literal chatterbox when she's here- maybe she secretly puts something in his goldfish crackers! It is interesting that most of his early words and word approximations are ones that he already has signs for. Is it normal to be in love with your kid's speech therapist?
We also discussed Nolan's minor head lag issue. She consulted with a physical therapist, and after talking to his pediatrician and the PT, we feel that it is not a pathological or neurological problem. He can hold his head up in a prone position and doesn't have low muscle tone in the rest of his body, so it is probably just one of those things where he is on the low end of normal for muscle strength in his neck. We'll keep an eye on him, but all the experts who deal with him are sure there is nothing to worry about. That's a big relief!
We had an ENT appointment that afternoon. I did ask about his MRI results and she confirmed they were totally normal. She is concerned about the drop in hearing level and wants another booth test before we see her again in January. We'll be monitoring his hearing levels every three months until he stabilizes. She does feel his loss is genetic due to the symmetry and odd configuration. She also said they used to see a lot of 2-3 year olds show up with severe/profound losses out of nowhere, and the number of these supposedly "acquired" cases of deafness have dropped substantially since the inception of the newborn hearing screening program. She said a lot of these losses were actually mild or moderate losses that progressed and were then found at the age of 2 or 3. Interesting to know, though we hope that Nolan's hearing won't deteriorate any more than it already has. His aids work really well for him right now, and we hope it stays that way. We're prepared for the alternative if it should continue to progress, and know that he'll be just fine no matter what.
We're still battling the weight issue, which hasn't been helped by a recent stomach bug. We are getting about 10 ounces of milk into him every day, but that is still far short of the recommended 24 ounces from the pediatrician. I think my son and I need to switch diet strategies!
Monday, March 3, 2008
The Miracle of Speech Therapy
I truly love speech therapy. Matthew has been showing some improvement already, which is thrilling to this mama! He has added "car" and "two" to his very short list of spoken words. He uses both of them spontaneously, and uses them to communicate (instead of just imitating the word). He doesn't know the exact meaning of the word "two," but knows it is more than one! When given a cookie, he'll always say, "two, two!" in the hope of getting as many cookies as possible.
Nolan isn't babbling with consonants yet, but this isn't really delayed even for a baby with normal hearing. The range for babbling with consonants is 6-9 months, so we're keeping a sharp eye out for hearing that first "mama" or "dada" or "baba." He is taking turns with making sound, imitating an open mouth, and making lots of "aaaahh" noises. He's localizing to sound and I'm a little anxious for that first booth test (not yet scheduled).
The boys are starting to interact, which makes getting a good picture of the two of them very difficult. One takes a lot of silly faces, and the other takes bribery. For those of you with even basic ASL knowledge, take a guess at what I bribed Matthew with (I know, I know- bad mother of the year award):