Nolan, the day before surgeryNolan is sleeping off the morphine, so I have a minute to post a short update. He had his scintiscan on Friday for gastric reflux, and I don't know the results of that test yet. To my untrained eye, there was no gastric reflux, but we don't have the radiologist's report yet. I'm not sure where the rest of the failure-to-thrive investigation will lead, but I'm loathe to do any more testing. I'm really working hard on the "fatten up Nolan" campaign!
The cystoscopy was this morning. The urologist said he didn't expect to find any posterior urethral valves (PUVs), because they are so very rare (something like 1/8000 births). Not only are they rare, but they usually have very severe side effects early in development. Many babies don't survive the neonatal period with this particular problem.
The procedure (for no valves) was supposed to take 10 minutes. 45 minutes later.... the urologist came out. He took us into the conference room and explaned that Nolan had posterior urethral valves and they did have to remove them. The bladder and kidneys don't appear to be affected at all- we're extremely lucky. The VCUG also showed no urinary reflux, which means that his kidneys aren't in jeopardy from that particular problem.
We are dealing with some amount of pain- the morphine has mostly worn off and he's just on Tylenol from here on out. We're trying to get him to drink a lot to keep things dilute. Hopefully the worst of it is over, and he will be up and running around by tomorrow morning!
I hate this medical stuff. I'm so glad we're past this and it looks like we have the PUV's resolved before they could cause any damage to his bladder and kidneys. Here's to the end of medical appointments!
10 comments:
Oh Leah ... you all have been through so much and yet you continue to uphold such a good, positive attitude (and continue to help others on Listen-Up)! You amaze me! Thank God that nothing's been affected and the PUVs have been identified and removed!! I hope Nolan has a quick recovery and up to himself real soon! Hugs to you!
Leah! What a day! You guys really need a break already! I hope he is doing well and is comfortable. You and hubby need a vacation. Well, I guess the boys do, too!
Take care. Thanks for the update!
I'm sending you a big ((HUG)), kiddo.
I've now learned whenever a medical professional tells you "But it's so rare that we don't expect to find ...." that they are TOTALLY going to find it. It's like they curse you by opening their big mouth.
Glad you guys caught it when it did and it didn't cause any severe problems sooner.
I hope Nolan is back to himself tomorrow! Thinking about you!
I, too, hope that this is the end of medical procedures!!! I'm hoping for a speedy recovery!!
I feel for you all, but especially that darling little boy. So glad you got good news and on your way to a good recovery.
I hope you and Nolan and fam get some rest tonight, this day is almost over! So hardr
Yesterday was bad once the morphine wore off, but by late last night he seemed to be OK. He's fine this morning, though not quite as chipper as he typically is.
I know most pediatricians carry the motto "think horses, not zebras" when diagnosing kids. With Nolan, it should be "think zebras, not horses!" The odds of congenital hearing loss are 3/1000, of congenital PUV's 1/8000. This kid needs to play the lottery!
Oh Leah,
Good gracious that kid should play the lottery!
You've been through a ton, and you're holding up wonderfully. I'm praying for Nolan... and you. What a blessing that his bladder and kidneys haven't been harmed!
Julie
My God, what have you gone through.thank God it is over and he is well.Angels are with both of you.Love n hugs to you both.Pray that this is last bit of bad time.All the best,
rouchi
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