Articles I Have Written
- The Best Books for Kids with Hearing Loss
- Sleep Studies for Kids
- Adjusting to Hearing Aids
- Free Resources for Deaf and Hard of Hearing Children
- First Steps When Baby Can't Hear
- When Baby "Refers" on the Newborn Hearing Test
- Water Sports with Hearing Aids
- What is the Newborn Hearing Screen?
- The Best Hearing Aid Accessories for Kids
- Choosing Eyeglasses for Kids
- Great Hearing Loss Simulations
Monday, June 22, 2009
An Unexpected Call
The phone rang today and caller I.D. said "Kaleida Health." Since we don't have any scheduled procedures at Buffalo Children's, I figured there must be a billing problem or something of that nature. I picked up the phone, and it was the speech language pathologist from the feeding clinic.
I had left her a message a couple of weeks ago stating the scintiscan was negative for reflux (per her request) and didn't really expect a call back.
"Well, have they done an upper GI? Did they start him on a trial of reflux meds anyway?"
Ummm... no! The ENT and pediatrician didn't really seem to want a follow up. The feeding clinic SLP told me that I needed to call the ENT now, because dysphagia in a 2 year old is not "normal." She is also calling our pediatrician with an urgent message that Nolan needs to have the cause of his swallowing issues figured out.
All righty then.
I figured it was just behavioral if the scintiscan was negative, but the SLP said that routinely refusing solids and spitting food out of the mouth is usually indicative of a medical issue. His diet is almost exclusively liquid now- he did have some oatmeal for breakfast (about 1/8 cup) and ate some yogurt for lunch (about 1/4 container). Other than that, it's just milk. If anything, his issue with solid food is getting worse, not better.
I called the ENT's office and made an appointment for July 1. If we can't find a medical cause for the refusal to eat solid foods, then we'll start attending the feeding clinic. Either way, we've got to get this kid eating. I might be able to fatten him up on Pediasure, but he will eventually need to eat regular food.