Say What?: On a Side Note...

Nolan's skunk costume FINALLY fits. He wore it for Halloween (at seven weeks old), but it was HUGE on him! Ann Gedes, eat your heart out.

Timeline

December 6, 2016: Cochlear Implant Activation
November 11, 2016: Cochlear Implant Surgery and Tympanoplasty
September 12-14, 2016: Cochlear Implant Evaluation at NYU
May 29, 2013: Ehlers Danlos Syndrome Diagnosed
April 9, 2013: Revision Supraglottoplasty at WCHOB.
April 2, 2013: Sweat Test at WCHOB
March 18, 2013: Pre-op appointment for second attempt at Revision Supraglottoplasty (WCHOB)
February 26, 2013: Revision Supraglottoplasty at WCHOB. Surgery cancelled due to massive airway infection found at bronchoscopy before surgery.
February 13, 2013: Hearing Test at WCHOB
January 11, 2013: Sleep Study/C-Pap Titration
October 19, 2012: Microlaryngoscopy and 5th set of PE tubes placed
October 8, 2012: Hearing Test
July 2012: Hearing Test - progression of right ear.
March 7, 2012: Endoscopy with Biopsy, Nissen Fundoplication, and Gastrostomy (Mic-Key)
December 5, 2011: Referral for fundoplication evaluation
December 2, 2011: Hearing Test - stable!
November 2011: Sinus CT Scan: chronic sinusitis discovered
September 6, 2011: Cleveland Clinic Genetics - microarray ordered and heart murmur discovered.
July 21, 2011: C-Pap Titration
July 5, 2011: Hearing Test
June 27, 2011: Upper GI Barium
June 7: Hearing Test
May 3, 2011: Sleep Study #3
April 8, 2011: Anisometropic Amblyopia discovered
December 14, 2010: Supraglottoplasty, Lingual Tonsillectomy, and Verification Bronchoscopy
December 7, 2010: 24 Hour pH/Impedence Probe
November 30, 2010: EKG and Echocardiogram
November 15, 2010: 24 Hour pH/Impedence Probe
November 10, 2010: 3rd Site Hearing Evaluation at WCHOB
October 12, 2010: Bronchoscopy/PE Tube Set #4
August 23, 2010: Hearing Test to confirm conductive component
August 8, 2010: Sleep Study #2
July 2010: John Tracy Hearing Test; conductive hearing loss discovered
June 24, 2010: kidney/bladder U/S and urology appointment
May 20, 2010: Hearing Test
April 13, 2010: Tonsillectomy/Adenoidectomy/PE Tube Set #3
March 23, 2010: sedated MRI for Central Apnea
February 10, 2010: EEG (sleep deprived)
February 2010: Central Sleep Apnea diagnosed
February 2010: Obstructive Sleep Apnea diagnosed
January 20, 2010: Sleep Study
January 12, 2010: Booth Test
August 2009: Endoscopy/24 hour pH probe: Severe GERD detected
July 9, 2009: Upper GI
June 23, 2009: Booth test
June 1, 2009: Cystoscopy and PUV ablation
May 19, 2009: Feeding Evaluation at Children's
March 2009: Urinary blockage detected
December 2008: Second set of PE tubes placed
December 8, 2008: Third Booth Test
August 28, 2008: Second Booth Test
August 11, 2008: Sedated MRI
May 15, 2008: First Booth Test!!
March 27, 2008: PE Tubes Placed
March 18, 2008: Sedated CT Scan
February 8, 2008: Geneticist Appointment
January 9, 2008: Get hearing aids!!
November 26, 2007: ABR #7
October 24, 2007: ABR #6, OAE, and tympanogram
September 13, 2007: AABR numbers 4 and 5 failed at 35 and 40dB
August 28, 2007: Three Screening AABR failed at 35dB

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Friday, May 16, 2008

On a Side Note...

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