Nolan started showing decreased energy on Saturday. No big deal, but we kept an eye on it. Sure enough, the gagging and the coughing followed.
Then the reflux laryngitis appeared, making the little guy sound as if he smokes three packs per day.
I thought (and hoped) that the nasal C-Pap mask contributed to the last reflux flare-up in August. I was wrong.
It's back, and it is back in full force.
You can hear it in his voice. The hoarseness is caused by acid damage to his voice box.
He spent much of today crying and in bouts of pain. His entire gastrointestinal system is rebelling. He kept holding his hands in front of his mouth, and he told me repeatedly that his stomach wasn't working.
I hate this. I hate what it does to him.
Hopefully this will be a short flare-up. He is still eating well, so that is a big plus. Right now, it is just the pain, cough, gagging, and hoarseness that seem to be causing problems. With the laryngomalacia, he is wheezing and has loud stridor at the moment, too.
The pain isn't constant, which is good. He'll be going along just fine, and then an attack will hit him and immobilize him. We went letterboxing today (a pastime which involves a very short walk to find a hand-carved stamp - this one was hidden by a local train station), and he did fine for part of it. Then the coughing and gagging started, so we headed home.
I can only hope that this flare-up is brief, and that he'll be back to himself very soon.
We see the ENT again in November, and we need to ask her what the long-term damage to his vocal cords is going to be. He has worked really hard to listen and speak, and it frustrates me that the reflux is taking away his sweet little voice.