The Cleveland Clinic sent off an information packet very quickly: I received it in the mail at the end of last week. It includes a map and a timeline of our appointment on September 6 (we meet with the genetic counselor first, then with the geneticist). They also included a fax number for Nolan's medical records - I talked to our pediatrician's office and they will probably send them on Saturday. Nolan's medical records are so extensive it will tie up the fax machine for a long time, so they don't want to do it during business hours.
Since our insurance only approved a solitary appointment with the geneticist at the Cleveland Clinic, further visits (and/or any tests) would have to be approved separately. I spend a significant amount of time battling our insurance company - I have a feeling that is not likely to change any time soon. I suppose we'll cross that bridge when we come to it.
We don't have much else going on, other than Nolan's C-Pap titration on the 21st of July. He's had a lot of tummy issues (reflux and some lower GI issues) lately, so hopefully those will settle a bit before the sleep study next week.