Wednesday, May 18, 2011

A Mish-Mash of Updates


  • Nolan's IEP meeting is on the 25th. This should go pretty smoothly, since his language is generally age-appropriate and we're going to maintain his services. Once we get his new goals into place, we should be set for another year.

  • I finally managed to get an appointment to adjust the settings on Nolan's FM system: it is currently set to 100% FM, which is not great for the classroom setting (he can't hear his peers with it on). Since his ENT wants a hearing test, he'll have an audiological evaluation and FM System adjustment on June 7.

  • Matt obtained his prescription for DDAVP (Desmopressin). We had the option to try this drug prior to starting on invasive testing through a urologist. If the DDAVP works, then we know that the little guy's bladder just needs to mature. If it doesn't, then we will have to see a urologist. We will start with 1 pill/day for week one, and if there is no improvement we will go to 2 pills/day for week 2. The last step is 3 pills/day during week three - if it doesn't work at that dosage, then we have to go to the urologist for more testing.

  • The Nurse Practitioner has seen the sleep study results for Nolan, but won't review them with me. She said she would really prefer Dr. Brodsky to review the results with us, so I won't see the sleep study report until Monday. I hate having to wait until the main appointment to see the written report, because it is easier to formulate questions after I've had time to digest the information in the report. If he passed it, then I wish our pediatrician's office would just tell me - the extra stress of waiting isn't really appreciated. If he failed it, then several more procedures will likely be recommended - and it would be nice to not get blind-sided by the information (and have to make decisions) at the appointment on Monday.

  • I made a vision appointment for Matt - I don't suspect any issues, but he starts kindergarten next year, and I thought it would be a good idea. Also, siblings have a higher rate of developing amblyopia than the general population, so it is probably a good idea to make sure both eyes are in good working order.
The weather has been truly awful: this entire spring, we have seen exactly 7 days of sunshine. We are supposed to see the sun and hit *gasp* SEVENTY degrees on Saturday. Otherwise, it has been rain every. single. day. With temperatures in the 40's. I will be glad when the weather warms up and we can get outside to play again!

3 comments:

EmmaVerdona124 said...

good luck with the audiologist appt next month!
for me? I'm getting an excellent SRT with my new set of hearing aids (Oticon Safari)

Herding Grasshoppers said...

Thanks for the update, Leah, and the cute picture!

rouchi said...

Hope his FM works for him, we have decided not to use it as it just does not work for us.And good to go through your update.The picture is as usual very lovely.