I called the ENT's office today to see if Nolan's MRI results were in yet. The nurse practitioner called me back within a half hour to say that the results were in. With the caveat that the ENT has not personally reviewed the scans and that he is just going by the report written by the radiologist, he gave me the result:
Normal.
There is no Chiari, as expected. There is also no tumor or mass on the brainstem, lesions, or anything indicative of degeneration. This is one time that I am unbelievably grateful for the term "idiopathic." Sometimes, having an unknown cause is better than all the known ones.
The tonsillectomy/adenoidectomy/PE tubes can continue on without delay, and if the central sleep apnea is still there in August, we will begin evaluating the use of a Bi-Pap machine.
There is nothing wrong with my baby's brain. To say that I am relieved would be the biggest understatement in the history of the world.
10 comments:
FANTASTIC!!!!! You deserve good news like that, after the week you've had. The way you put it ("nothing wrong with my baby's brain") really conveys the magnitude of all this and how much stress you've been under.
so happy to hear!
I have a huge lump in my throat for you right now. what. a. relief.
Hallelujah... hallelujah.
Julie
Such wonderful news, Leah. I am sure you are so relieved.
Give that little guy a hug for me, OK?
Hooray! So happy for y'all!
I'm sooo thankful and very happy for you! What a relief!
Hi again, Leah. I couldn't figure out how to e-mail you either, so I apologize for posting this here. A delayed thank you for your message/comment from back in January! As you probably noticed, I hadn't updated that blog (or any blog) in a long time, and just checked it now because I am thinking about trying to blog again - partly because I sometimes feel the need to get thoughts and feelings down in writing, and partly to be a source of information and support to other parents of children with hearing loss just like you and others have been to me. Anyway, just wanted to say I finally read your message and really appreciate it!
I feel the relief through my computer screen Leah! Whew!
Happy tears welling in my eyes for you. I can only imagine the stress you've been going through. GREAT news Leah!
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