Nolan is doing pretty fabulously this month. No signs of reflux, which is fantastic, and he's been pretty happy. We aren't using the g-tube to vent quite as frequently, which means his stomach is finally settling into a more normal "routine" following the fundoplication.
He is still struggling with weight gain. He's down to 32 pounds, which is hitting the 5% mark on the growth charts. His eating is hit-or-miss, and he's been struggling with chronic diarrhea. I'm not sure what is causing the diarrhea, but I will have to talk to his pediatrician about it, because it certainly isn't helping on the weight front. He still has stridor, of course - we can hear it when he doesn't use the C-Pap at night (he was sick last week and didn't use it for a few nights):
Despite the stridor and weight gain issues, however, he is fairly healthy. He definitely has a rosy glow to his cheeks and the fundoplication has been helpful to him. He doesn't choke as often and his little nose is clear - and he has been free of ear infections since the surgery.
I filled out his kindergarten registration packet on Thursday and sent it back to his school. Nolan is behind on his immunizations because he had the flu shot 2 weeks before his four year old well-child visit. They didn't want to interrupt the immunity forming from the flu shot, so his four-year-old jabs were put on hold. Then he had the surgery, got a few nasty viruses, and we were on vacation. I called the pediatrician last week to get him in for the shots, since he'll be five in a couple of months and he'll need a whole new round of immunizations.
We're off to enjoy a fabulously warm Memorial Day weekend - we take the sun when we can get it in these parts!
It's pool time!