I've moved the neurology patient history form to the front of the binder, along with the (normal) EEG results and the sleep study results. I also typed up a list of all previous labs Nolan has had run, just in case the neurologist wants to order any laboratory tests. I don't want to needlessly duplicate anything that has already been done!
I was on a parent forum, and one of the mothers there suggested something that is very simple, but also something I have never done. She said to write down your questions for the doctor (which I have done before) and to leave space for him to write in an answer. This is simple, but also wonderfully brilliant. Often, when we are actually in the doctor's office, we ask the questions on our prepared list, but the conversation runs astray and we never get to all of them. Or the doctor glosses over a question, and it comes back to worry us later.
I wrote down a few questions for the neurologist, keeping the list to six questions. I left plenty of room for him to respond, so hopefully we'll get some answers tomorrow (though I'm not getting my hopes up too high that he'll look at the comprehensive medical picture). My questions are:
- Should we have a monitor for Nolan at night, since he has central apnea?
- Will the Tylenol with codeine be safe for him after the tonsillectomy?
- How can the central apnea be treated?
- Can the staring spells be related to the central apnea?
- Could the hearing loss, posterior urethral valves, severe GERD, and central apnea be caused by one problem?
- Is there any testing we can do to see if these things all tie together?