Articles I Have Written
- The Best Books for Kids with Hearing Loss
- Sleep Studies for Kids
- Adjusting to Hearing Aids
- Free Resources for Deaf and Hard of Hearing Children
- First Steps When Baby Can't Hear
- When Baby "Refers" on the Newborn Hearing Test
- Water Sports with Hearing Aids
- What is the Newborn Hearing Screen?
- The Best Hearing Aid Accessories for Kids
- Choosing Eyeglasses for Kids
- Great Hearing Loss Simulations
Thursday, July 9, 2009
Since Nolan isn't a big fan of solid food, he is quite hungry when he wakes up in the morning. He usually cries until he gets his "nilt" (or milk, for the uninitiated). I knew this morning wouldn't be fun, but I also figured that his extreme desire for milk would cause him to drink the barium without incident.
We arrived at Buffalo Children's by 7:45- early for the procedure, but since we were the first ones on the list, I figured we might get in a tad early. Which was a good thing, since Nolan was screaming "NILT!" to anyone within earshot.
The technician took us back for the first X-ray (just a clean shot of his tummy, no barium involved yet) and I had to wait outside the door while Nolan freaked out and had his "picture taken." Then she gave him back to me, and we went to wait for the radiologist to show up so we could do the barium part of the procedure.
The technician told me that if he refused to drink enough barium, then they would have to insert an NG tube to get all the images they needed. I had all my fingers crossed that Nolan would drink that barium like crazy once they took him back for the scan.
The actual procedure takes about 30 minutes, and parents aren't allowed anywhere near the X-ray room during the process. The radiology tech came to take a history prior to the scan, and was shocked to see his weight. She said, "does he have a g-tube?" Yikes! No, he doesn't, but that set me on edge. Then the radiologist came in, saw the gastroparesis diagnosis, the failure to thrive, and the refusal to eat solid food. He said, "does he have a mickey?" The nurse said, "No, no g-tube." The radiologist shook his head and asked me why it had taken ten months to get a failure-to-thrive child in for an upper GI. I didn't want to go into the whole, "the pediatrician thought he would grow out of it" thing, so I told him that we had a very dedicated ENT who had pushed the work-up through.
They took Nolan and did the procedure, and then brought him back to me with one hearing aid out and covered in barium. Note to parents of hearing aid wearers who are getting an upper GI: take the aids out or protect them with Ear Gear! Luckily the aid is fine, though I think there might still be some barium residue in Nolan's ear. Turns out that Nolan is not enamoured with barium. They did have to use a naso-gastric tube to finish the scan.
We had to wait another half hour, then take another X-ray to ensure that the barium was moving out of the little guy's system. The tech had told us we would get the results the same day as the procedure, but after the procedure was run she told us that we would have to wait for the report to get written and then sent to our ENT. This means the results won't be available until Monday at the earliest, since the ENT will have to review them before I get the report over the phone.
We were finally free to go, and Nolan was happy to get some diluted fruit juice. After barium, I'm pretty sure that apple juice tastes pretty good!