tag:blogger.com,1999:blog-2074245988180152453.post6385311212800971830..comments2023-12-21T03:45:20.189-08:00Comments on Say What?: The Results Are In, And They're... Interestingleahhttp://www.blogger.com/profile/05004783118268323560noreply@blogger.comBlogger19125tag:blogger.com,1999:blog-2074245988180152453.post-45068752858492075702010-01-18T11:08:03.692-08:002010-01-18T11:08:03.692-08:00Good grief but that cutie keeps everyone on their ...Good grief but that cutie keeps everyone on their toes! Whenever your posts go into detail on the audiograms I end up learning a lot. Ultimately, I retained very little of what I learned about hearing loss since Ethan's was totally profound in both ears. We just didn't have these experiences stacking up and informing us, so I learn so much about it from you. I'm glad you were able to get a good session in the sound booth and it does seem like you'll have your plates full this winter, as always. We've also taken advantage of a procedure requiring anesthesia and have coordinated multiple people to do tests while he's knocked out. That in and of itself is a logistical nightmare. Best wishes to you guys. xoxoAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-75751518150720159942010-01-18T02:01:33.502-08:002010-01-18T02:01:33.502-08:00Thanks for dropping by my blog last week (Little D...Thanks for dropping by my blog last week (Little Dumer News)and commenting, it is always nice to hear from other parents of children with hearing loss. I hope that a resolution to the conductive loss clears things up greatly for Nolan! Keeping my fingers crossed for ya!Chris'n'Debhttps://www.blogger.com/profile/05554989780957617445noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-15655420181816478712010-01-17T14:27:43.940-08:002010-01-17T14:27:43.940-08:00That's fantastic that he's learning to coo...That's fantastic that he's learning to cooperate for a sound booth test!! <br /><br />I'm sorry those results are so frustrating. Seeing his audiogram, though, leaves me fairly hopeful that he will get those missing sounds back. There are a lot of visual ways you can compensate for the underamplification for him. Be sure to ask his AVT or SLP about those because they can really help.<br /><br />We're always thinking of you guys!!!AimeeTheSuperMomhttps://www.blogger.com/profile/11536525065566856647noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-1614393905596747242010-01-17T05:12:40.462-08:002010-01-17T05:12:40.462-08:00Leah-Since Nolan are so close in age and similar w...Leah-Since Nolan are so close in age and similar with their hearing loss, it makes me wander if we should get Luca retested like you did. We are working with him on touching his nose when he hears a sound, so I think we may be able to get a more accurate hearing test like you did. <br /><br />Oh, our little boys...Meganhttps://www.blogger.com/profile/11338312306137722985noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-38679514309132768422010-01-16T05:22:25.083-08:002010-01-16T05:22:25.083-08:00You are an excellent teacher. I have learned more ...You are an excellent teacher. I have learned more about Josh's hearing issues from reading your post than from our doctor and audiologists' explanations. Strangely, this post has helped me to understand the further testing that Josh is scheduled for this coming Monday.<br /><br />I will pray for Nolan. What a brave guy to go through all of this testing and to do the last one without his mom present. He is learning independence and self-reliance (and resilience!) at an early age.<br /><br />Heidi (motherimperfect--I guess I have to post comments from my empty blogger account)Green Bushttps://www.blogger.com/profile/08407656425762487381noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-11555802715023816312010-01-16T01:13:50.145-08:002010-01-16T01:13:50.145-08:00I can feel all your anxiety and stress in this pos...I can feel all your anxiety and stress in this post. I really pray all is well and his hearing is steady and does not have a progressive loss. Take care and God has plans for him, he would be alright .rouchi6https://www.blogger.com/profile/03580500636098449632noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-64941666054489868892010-01-14T23:12:58.280-08:002010-01-14T23:12:58.280-08:00Oh, my, LOVE the hair. I know what you mean about...Oh, my, LOVE the hair. I know what you mean about not cooperating with the hair cuts. I think they get tired of people always coming at their head with various equipment! We solved the problem by cutting it ourselves at home in the tub in a series of about 7 nights, a little here, a little there. Might not look that fashionable, but it keeps his ears on and his vision clear!Kimmy Khttps://www.blogger.com/profile/15537437724888895936noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-35377958431246636622010-01-14T19:47:49.606-08:002010-01-14T19:47:49.606-08:00you are such a great mom leah!! I am so encouraged...you are such a great mom leah!! I am so encouraged by each post from you to press on and never give up. Let me encourage you by reminding you that God has given Nolan the perfect mom for him! You are doing everything you can to prepare him to do whatever God has and will call him to do! Thank you for being a Godly example to me!!<br /><br />Blessings!Krystalhttps://www.blogger.com/profile/15360112677461180851noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-73163798127638212372010-01-14T09:11:33.211-08:002010-01-14T09:11:33.211-08:00Well, Leah, I think it is a LOT to do with you, as...Well, Leah, I think it is a LOT to do with you, as well as Nolan. You're both working hard at it... and keeping it fun :0)Herding Grasshoppershttps://www.blogger.com/profile/15668974245505544238noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-29767663815983336982010-01-14T05:46:52.738-08:002010-01-14T05:46:52.738-08:00Tammy, Nolan's cowlicks are hilarious. There&#...Tammy, Nolan's cowlicks are hilarious. There's always one, and it is always in a different place! He really needs a haircut, but he doesn't cooperate well for those (surprise, surprise). I'd cut it at home, but I'm afraid it would end up looking stranger than the cowlicks, lol!<br /><br />Julie, the audiologists were amazed that his speech is so good with his level of loss, especially since he's generally under-amplified (he has had a conductive component due to fluid or wax - and now an unknown cause for so long, that his aids probably have rarely been set high enough). He misses sounds here and there, but you wouldn't know he had a hearing loss by just listening to him. I was quite proud when they praised his speech abilities, though it has little to do with me (if it had been Matt with a hearing loss, he STILL wouldn't be speaking- he isn't as wired for verbal skills as Nolan is).leahhttps://www.blogger.com/profile/05004783118268323560noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-62892425793591603902010-01-14T04:13:01.243-08:002010-01-14T04:13:01.243-08:00Leah I think you've had a busy spring, busy su...Leah I think you've had a busy spring, busy summer, busy fall, so why not end it all with a busy winter? Just seems par right? : )<br /><br />That's great Nolan sat in there without you and the necessary testing done - at least you know the results are good, per se, and have a plan of action in place. You amaze me.<br /><br />I had to laugh at the picture because as soon as I saw it (without reading your caption) I thought "him and Aiden ARE SO alike" - Aiden has crazy uncontrollable hair because of all his cowlicks. LOL The boys are destined to know each other one day!tammyhttps://www.blogger.com/profile/11440760114820803415noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-82469643470373639272010-01-13T13:45:58.813-08:002010-01-13T13:45:58.813-08:00Very excited to hear that you had a successfull so...Very excited to hear that you had a successfull soundproof booth test. Good luck with all your appointments, hope you sort this out as soon as you possible can!!Jenny- Sienna's momhttps://www.blogger.com/profile/14718323920922230432noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-65974419975614268742010-01-13T08:31:51.219-08:002010-01-13T08:31:51.219-08:00Wow.
Glad he was so cooperative... he's gett...Wow. <br /><br />Glad he was so cooperative... he's getting to be such a big boy!<br /><br />Praying the new loss is NOT permanent, but don't be too discouraged. Tate's loss is far worse and his speech is great. No one would know, from his speech, how abysmal his hearing is.<br /><br />Nolan is a plucky and persistent little guy... not to mention his parents :0) You guys will make it.<br /><br />JulieHerding Grasshoppershttps://www.blogger.com/profile/15668974245505544238noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-61917296627168883752010-01-12T19:50:06.719-08:002010-01-12T19:50:06.719-08:00Well, I'm glad he was cooperative -- and hopef...Well, I'm glad he was cooperative -- and hopefully that bodes well for future tests, too. But I'm sorry for the additional loss, especially the conductive element, just because it's so confusing and leaves you limbo -- although I hope it can be corrected. I forget -- have you had an MRI? What do they know about his inner ear anatomy?<br /><br />ST playgroup was small today (after a huge crowd last week). I taught them the Beatles song "Birthday". Good luck with the sleep test next week, and I hope you can join us sometime thereafter.Juliahttps://www.blogger.com/profile/12065377267682881396noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-13157219884788910282010-01-12T19:36:30.092-08:002010-01-12T19:36:30.092-08:00I am confused. I was never good at the whole dB t...I am confused. I was never good at the whole dB thing. But it sounds like you have a plan in place (as always).<br /><br />I will keep you guys in my thoughts.<br /><br />BTW...love the cowlick!Apraxia Momhttps://www.blogger.com/profile/04861331633480379357noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-68526048810757889312010-01-12T17:38:46.040-08:002010-01-12T17:38:46.040-08:00He's not a candidate for a CI- his worst heari...He's not a candidate for a CI- his worst hearing is at 60dB and CI candidates usually have a pure-tone average of 70dB or worse. I think 60dB is technically considered "moderately severe," though there are two different scales (one calls "severe" 70-90dB and the other calls "severe 60-90dB).<br /><br />The other big thing is that it is a mixed loss. Even if it were found to be permanent and he was a mixed 90dB loss, he wouldn't be a CI candidate because they won't count a conductive component into the Pure Tone Average for considering candidacy. <br /><br />We know the conductive component is more than just needing a PE tube, because he has NO fluid. There is a very tiny perforation (our ENT couldn't even see it under the microscope when we were there last). We only know it is there because of the tympanogram. Unfortunately, it is unlikely that the perf. is causing a 30dB drop. But who knows? If the perforation is causing it, we'll need to have the eardrum patched. Though I don't know how they'll do that if they can't even find the hole!<br /><br />We'll take things one appointment at a time, I suppose. We'll get through the sleep study next, then focus on getting into the ENT ASAP.leahhttps://www.blogger.com/profile/05004783118268323560noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-69799587137760475562010-01-12T16:16:36.599-08:002010-01-12T16:16:36.599-08:00Interesting in deed! I'm glad that you found s...Interesting in deed! I'm glad that you found some answers to your questions. (Good Job Nolan!)<br /><br />It sounds like you and your team have a good plan of attack. We'll pray that his hearing is restored with a simple PE tube!Drew's Momhttps://www.blogger.com/profile/09785837091572603406noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-86237260676062068752010-01-12T15:20:06.743-08:002010-01-12T15:20:06.743-08:00I'm sorry things are proving so odd. Progressi...I'm sorry things are proving so odd. Progressive losses are the worst!<br /><br />So, at 60 db, Nolan will now be considered "severe", right? At what point would you start looking into a CI? We did ours when Miss Kat was 65 sloping to 80. I know the criteria for over 2 is severe (or greater) loss and less than 40% on a speech test...<br /><br />Anyway, I hope you get it figured out!Miss Kat's Parentshttps://www.blogger.com/profile/08535904035034717518noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-46512615089615628312010-01-12T13:25:25.457-08:002010-01-12T13:25:25.457-08:00Well, probably not the most desired news, but glad...Well, probably not the most desired news, but glad Nolan was cooperative today so you have a better idea of his needs.<br /><br />Since you have a plan, you can just sit back and relax, right?!<br /><br />Keep us posted!The Brightshttps://www.blogger.com/profile/17452377725056875520noreply@blogger.com