tag:blogger.com,1999:blog-2074245988180152453.post2561509285937936589..comments2023-12-21T03:45:20.189-08:00Comments on Say What?: Testing, Testingleahhttp://www.blogger.com/profile/05004783118268323560noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-2074245988180152453.post-9979417389182530722009-07-28T09:01:16.132-07:002009-07-28T09:01:16.132-07:00What I try doing when prisha is not responding to ...What I try doing when prisha is not responding to her name is I tell her i called her no. of times and since she did not respond, I shall also not respond when she calls me . It really works. Now I tell her i called you 5 times or 2 times etc.She is now more responsive. Try it maybe it works.rouchi6https://www.blogger.com/profile/03580500636098449632noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-81726385506943323032009-07-25T15:54:17.617-07:002009-07-25T15:54:17.617-07:00I'm just taken back in time (both in years and...I'm just taken back in time (both in years and in days) when I read your posts. I mean, Ethan has always been small like Nolan, I think he was still at 20 lbs well into his 2nd year. He had the upper GI, the scope, the Ph probe, etc. But we didn't find a GI doc that was nearly as thorough as yours, not even close. I eventually took him to a metabolic clinic to get all the other labs done and that has been what has ultimately led us on the path of healing his gut and getting him to eat. <br /><br />When we removed casein and gluten from his diet and followed the results of the IgG tests, that's when he started to develop an interest in food and now I can't keep him out of the kitchen. He's still really low weight and thin, he wears a 2T around his waist and he's nearly 4 years old. But the fact that he is interested in a variety of foods and eats like a horse is all due to the diet changes. No medication worked for him like this diet has. So if all else fails (God forbid), you've always got that to try!<br /><br />I know how exhausted you are...Ethan has been getting up at 11 p.m. and staying up for the remainder of the night and the entire next day. I'm losing my mind over here! Hang in there.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-259092057393284662009-07-24T13:06:46.188-07:002009-07-24T13:06:46.188-07:00Julia- thanks for the link! We've really been ...Julia- thanks for the link! We've really been struggling with his hearing aids lately. Sometimes he's good with them, and other times he throws them an impressive distance. VERY frustrating! We're really noticing some difficulties with low-frequency discrimination (where he hits 60dB- the word Nemo would be pronounced "me-oh" by him), so I'm getting a little stressed with his aid-tossing behavior. Not that I let him know that I'm getting distressed, of course. KIDS!leahhttps://www.blogger.com/profile/05004783118268323560noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-32879580704711367202009-07-24T12:05:14.880-07:002009-07-24T12:05:14.880-07:00Leah, check this out:
http://www.silkawear.com/
...Leah, check this out:<br /><br />http://www.silkawear.com/<br /><br />They are exactly like pilot caps, but they have mesh sides and are designed especially for pediatric CI and HA users. There was a post about them on cicircle. I don't know if this would help with Nolan's aid removal propensities, but I thought I'd mention it.Juliahttps://www.blogger.com/profile/12065377267682881396noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-37948402892189135912009-07-24T11:44:27.096-07:002009-07-24T11:44:27.096-07:00ouch ouch......what difficult times these are. I t...ouch ouch......what difficult times these are. I tried also at my hand at the clean catch for her urine samples. it is tough.You need a break.rouchi6https://www.blogger.com/profile/03580500636098449632noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-72444585442421536112009-07-23T19:05:32.717-07:002009-07-23T19:05:32.717-07:00Oy, Leah -- you need a week at a luxurious spa. (...Oy, Leah -- you need a week at a luxurious spa. (Not that I've ever been to one, but aspects of it sound lovely. Not sure about being painted with mud, though.) I certainly hope all this results in something definitive and fixable.Juliahttps://www.blogger.com/profile/12065377267682881396noreply@blogger.com