tag:blogger.com,1999:blog-2074245988180152453.post1381671767935702862..comments2023-12-21T03:45:20.189-08:00Comments on Say What?: So THAT'S Why He Won't Eat!leahhttp://www.blogger.com/profile/05004783118268323560noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-2074245988180152453.post-17193476865283904252009-09-02T07:51:53.905-07:002009-09-02T07:51:53.905-07:00You brought tears of joy to me as I read your post...You brought tears of joy to me as I read your post. I know how it feels to live in the unknown and to fight a battle without knowing what your fighting against. Yeah! I can just imagine what he has been going through. Good on you for sticking through all the testing cause now you will have a healthier and happier little boy and of course your life just became easier too!!Jenny- Sienna's momhttps://www.blogger.com/profile/14718323920922230432noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-34786981424909483032009-09-01T11:08:48.813-07:002009-09-01T11:08:48.813-07:00Praise the Lord for answers! Can't wait to wat...Praise the Lord for answers! Can't wait to watch him pack on the pounds!Krystalhttps://www.blogger.com/profile/15360112677461180851noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-54398668708952317272009-09-01T10:34:37.199-07:002009-09-01T10:34:37.199-07:00So glad you finally have an answer!So glad you finally have an answer!Anonymoushttps://www.blogger.com/profile/08501595234515610475noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-56080935547419230262009-09-01T10:03:36.555-07:002009-09-01T10:03:36.555-07:00What great relief you must feel having a medical d...What great relief you must feel having a medical diagnosis that is, for the most part, correctable! This was a particularly interesting post for me, especially all of the details. Those numbers are crazy!<br /><br />X was diagnosed with severe GERD at the age of 2 months (which combined with his floppy esophagus caused blue spells). After a few long hospital stays, his medical team, involving doctors from many departments, finally settled on two medications, a special high calorie/low fluid diet and specific positioning during feeding and sleeping. <br /><br />The good news is that, after almost two years, X is definitely outgrowing the reflux. He's able to cope with less medication and a wider variety of foods. <br /><br />Good luck to you and Nolan - everything will get better from here!xraevisionhttps://www.blogger.com/profile/08379269876085160558noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-23234229903255245792009-09-01T09:47:38.308-07:002009-09-01T09:47:38.308-07:00Boy, I'll tell you- we're glad to know wha...Boy, I'll tell you- we're glad to know what to do for it! He still had 22 reflux events while sleeping, so it is "better" but not as severe while he's prone. He also still has the gastric motility issues (food took too long to go down his esophagus- I didn't write about that), so they think the mild gastroparesis is legit. We just have to try the Nexium, see how it works, and then monitor him closely to make sure he keeps gaining weight/doesn't fry his esophagus.leahhttps://www.blogger.com/profile/05004783118268323560noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-72555794905540021452009-09-01T08:28:14.845-07:002009-09-01T08:28:14.845-07:00WOW!!! Poor baby!
At least now you know and you ...<b>WOW!!!</b> Poor baby!<br /><br />At least <i>now you know</i> and you know what to do.<br /><br />For cryin' out loud, quit givin' that kid coffee! (JK)<br /><br />My husband has reflux too, but (more typical) worse when he's horizontal. At least it isn't bothering Nolan as much when he's resting.<br /><br />Praying for more comfortable eating for Nolan,<br /><br />JulieHerding Grasshoppershttps://www.blogger.com/profile/15668974245505544238noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-82453494824053711482009-09-01T01:44:38.746-07:002009-09-01T01:44:38.746-07:00Aw , poor Nolan!! Hug him from me all the way from...Aw , poor Nolan!! Hug him from me all the way from Greece?<br /><br />I had really bad reflux as a kid ( no GI doctor , no exams back then ) and I was picky and throwing up all the time.<br /><br /> when I got to twenty , it got to really mild , and now it's almost non existent unless I eat any spicy food.I grew it off.Hope that's the case for Nolan.<br /><br />Hug him!Viviehttps://www.blogger.com/profile/00392288497351450072noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-7359589771441524062009-08-31T19:15:23.824-07:002009-08-31T19:15:23.824-07:00(1) Woohoo on a medical diagnosis!
(2) Poor, poor...(1) Woohoo on a medical diagnosis!<br /><br />(2) Poor, poor little guy!!! I hope he gets some relief and fast. I wonder if his discomfort has had any secondary behavioral effects. You've said he's a bit clingy -- maybe he'll branch out more when he's feeling better. Oh, give the kid a hug for me -- I feel so bad for him.Juliahttps://www.blogger.com/profile/12065377267682881396noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-14221409093107771202009-08-31T19:06:50.322-07:002009-08-31T19:06:50.322-07:00Oh poor little honey! I'm so glad they figured...Oh poor little honey! I'm so glad they figured this out and that Nolan is finally on a path to (hopefully) recovery from it all! Like Jen said, I too had horrible reflux when I was pregnant with Aiden, but I'm sure not nearly as bad as this. My throat burned just reading about it ... I just want to reach out and give him (and you) a big hug!tammyhttps://www.blogger.com/profile/11440760114820803415noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-88051823938959037932009-08-31T18:08:06.441-07:002009-08-31T18:08:06.441-07:00Wow! I just keep thinking about the awful reflux I...Wow! I just keep thinking about the awful reflux I had while I was pregnant, and I can only imagine how awful it is for him! I'm so glad that you've gotten to the bottom of the problem though, and hopefully it will be much better for him soon!PolyglotMomhttps://www.blogger.com/profile/10359518388037465144noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-56545806603111240762009-08-31T17:46:07.154-07:002009-08-31T17:46:07.154-07:00We have no idea. Since we didn't have it diagn...We have no idea. Since we didn't have it diagnosed until recently, we don't have a history of it getting worse or better. His symptoms have only gotten worse as he gets older, so that's not promising. On the other hand, it can be managed with medication for now and that should give him some relief! We'll take it as it comes, I suppose.Unknownhttps://www.blogger.com/profile/17538826920353898318noreply@blogger.comtag:blogger.com,1999:blog-2074245988180152453.post-80648019895689111742009-08-31T17:24:20.678-07:002009-08-31T17:24:20.678-07:00Poor Nolan! Do they think he will grow out of it o...Poor Nolan! Do they think he will grow out of it or will it always be a problem?MBhttps://www.blogger.com/profile/07206411306306537264noreply@blogger.com